The State Board of Health shall by regulation:
1. Prescribe the form and manner in which information on cases of sickle cell disease and its variants must be reported;
2. Prescribe the information that must be included in each report, which must include, without limitation:
(a) The name, address, age and ethnicity of the patient;
(b) The variant of sickle cell disease with which the person has been diagnosed;
(c) The method of treatment, including, without limitation, any opioid prescribed for the patient and whether the patient has adequate access to that opioid;
(d) Any other diseases from which the patient suffers, including, without limitation, pneumonia, asthma and gall bladder disease;
(e) Information concerning the usage of and access to health care services by the patient; and
(f) If a patient diagnosed with sickle cell disease and its variants dies, his or her age at death; and
3. Establish a protocol for allowing appropriate access to and preserving the confidentiality of the records of patients needed for research into sickle cell disease and its variants.