Genetic Information Privacy Act
Illinois · Public Health · §§ 410-513-1 to 410-513-97 · 27 sections
Overview
The Genetic Information Privacy Act governs the confidentiality of genetic testing information, treating it as protected health information that generally may not be disclosed without the consent of the person tested. It restricts how insurers and employers may obtain or use genetic test results, sets out limited circumstances in which the information may be used or released — including treatment, payment and health care operations, health oversight, public health activities, research, paternity proceedings, and exchange through health information networks — and imposes minimum-necessary and de-identification limits on what may be shared. It also binds anyone who receives the results to the same disclosure restrictions and creates a private right of action, with damages and other relief, for violations.
Editorial summary generated from the text of this act. It is not part of the statute — read the sections below for the operative language.
Sections covered
- 410 ILCS 513/1Short title
- 410 ILCS 513/10Definitions
- 410 ILCS 513/15Confidentiality of genetic information
- 410 ILCS 513/20Use of genetic testing information for insurance purposes
- 410 ILCS 513/22Tests to determine inherited characteristics in paternity proceedings
- 410 ILCS 513/25Use of genetic testing information by employers
- 410 ILCS 513/30Disclosure of person tested and test results
- 410 ILCS 513/31Uses and disclosures for treatment, payment, and health care operations
- 410 ILCS 513/31.1Uses and disclosures for health oversight activities
- 410 ILCS 513/31.10Minimum necessary
- 410 ILCS 513/31.2Uses and disclosures for public health activities
- 410 ILCS 513/31.3Business associates
- 410 ILCS 513/31.4Record locator service to support HIE
- 410 ILCS 513/31.5Use and disclosure of information to an HIE
- 410 ILCS 513/31.6Other disclosures
- 410 ILCS 513/31.7Establishment and disclosure of limited data sets and de-identified information
- 410 ILCS 513/31.8HIE opt out
- 410 ILCS 513/31.9Research
- 410 ILCS 513/35Disclosure by person to whom results have been disclosed
- 410 ILCS 513/40Right of action
- 410 ILCS 513/45Damages or other relief
- 410 ILCS 513/5Legislative findings; intent
- 410 ILCS 513/50Home rule
- 410 ILCS 513/91(Amendatory provisions; text omitted)
- 410 ILCS 513/93(Amendatory provisions; text omitted)
- 410 ILCS 513/95(Amendatory provisions; text omitted)
- 410 ILCS 513/97(Amendatory provisions; text omitted)
Enacted in other states
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