N.Y. Pub. Health Law § 2021

§ 2021. Duty to report. 1. Every physician, nurse practitioner,\nphysician assistant and general hospital that diagnoses or is treating a\npatient diagnosed with ALS or MND shall give notice no later than one\nhundred eighty days of each case of ALS or MND coming under their care,\nto the department, in a format to be determined by the commissioner,\nexcept as otherwise provided in this article.\n 2. All patients diagnosed with ALS or MND shall be provided with\nwritten and verbal notice regarding the collection of information and\npatient data on ALS and MND. Patients who do not wish to participate in\nthe collection of data shall affirmatively opt out in writing after\nample opportunity to review such notice, provided that the mere\nincidence of a patient with ALS or MND shall be the sole required\ninformation for the registry under section two thousand twenty-two of\nthis article for any patient who chooses not to participate.\n